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Unity and diversity are at the heart of a diverse group of people connected together as a

Creating a community of support and raising awareness of
CUL3-related neurodevelopmental disorder. 
 

47

THE AMERICAS

27

EUROPE

4

ASIA

3

OCEANIA

A Global Community

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Meet Our Incredible Kids

Living with CUL3-related neurodevelopmental disorder comes with unique challenges, strengths, and experiences. Get to know some of the amazing kids in our community and their journeys.

News

Latest insights, developments, and updates for the CUL3 community

Family News

We are pleased to share that Christelle, a mother of a son with CUL3-related neurodevelopmental disorder, has written a book titled 'Viens, on est plus forts que la maladie'. In this thoughtful account, Christelle reflects on her journey raising her son with a rare genetic condition. Her story highlights the challenges, resilience, and the support of family, offering insight and inspiration to others facing similar experiences. This book is especially meaningful for families affected by CUL3-related neurodevelopmental disorder, providing a relatable and encouraging perspective. Please note the book is in French. 

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You can learn more about Christelle as an author on instagram @christelle.leroy.autrice

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